Celebrate National Spina Bifida & Hydrocephalus Awareness Month at the 4th Annual Troy’s Trail Spirit Walk Run at Clergue Park Boardwalk this Saturday, June 13.
Spina bifida is the number one permanently disabling neural tube birth defect in Canada where the brain and spine, or just the spine, fails to develop properly within the womb. One in 1,300 babies is born with spina bifida and even more have hydrocephalus,known as water on the brain. In Canada, hydrocephalus is the number one cause for brain surgery in babies. This build up of fluid can lead to swelling and can permanently damage the brain causing both physical and mental growth, or even death if not treated. Both of these disorders are disabling and lifelong presenting daily hardships.
As representatives of Sault Ste. Marie for the Spina Bifida & Hydrocephalus Association of Ontario, our goal is to continue creating awareness. We want people to know that we’re here, that we’re a support system, and we don’t want anyone to feel like they have to go through this alone like we did.
Troy’s Trail is part of an Annual Ontario-wide one-of-a-kind grassroots event where families living with the challenges of spina bifida and hydrocephalus raise awareness of these neurological conditions at the local level. SB&H is the only organization in the province providing support and comprehensive information to thousands of parents, youth and adults living with SB&H. These funds are critical to the Association’s ability to provide vital programs and services as the association receives no government funding
Each year we have met and talked with several nice people, shared our stories and experiences, and have truly been there and helped one another.
The awareness is spreading…we are growing, and we feel we are making a difference!