Community members came out to show their love and support to the Fowler family on Saturday as they honoured Kayge’s seventh birthday wish – a carnival party.
“He was talking to Mandy about his birthday and he wanted a carnival birthday again, so we promised him we’d do that for him, and we did,” Kayge’s father, Paul Fowler, told SaultOnline.
“Now we’re just combining celebrating his birthday and raising funds at the same time to continue fighting DIPG.”
The Fowler family was touched by DIPG, a rare form of childhood brain cancer, when Kayge was diagnosed at the age of five. After over a year of trips to Mexico and experimental treatments, unfortunately Kayge lost his fight in June of this year.
Fowler said the community’s support during their DIPG journey – and even after – has been great.
“The support from the city has been amazing as usual. It’s great to see that even though Kayge is no longer with us, physically, we still have the support and we can keep fighting this in his name.”
“(Having that support) is kind of everything,” an emotional Fowler said, “because with losing him, it’s all we have left.
“We went from taking care of him 24/7 for a year to him not being here. So this is our way of still kind of being able to take care of him; we’re still doing something for him. Hopefully we can raise enough funds and help move the needle on this disease and create awareness at the same time, get funding for research and funding to help other families, that heaven forbid, they have a child diagnosed.”
Fowler said they can’t thank the community enough for all they’ve done for the family, and asks them to continue the support, as the Fowler family continues to raise both funds and awareness of this awful disease.
“This is a lifelong commitment for us now; you’re going to be seeing a lot of us out in the community doing fundraising, because something needs to be done,” he said.
“Between the US and Canada alone, we have close to 400 children dying from this disease every year. So I don’t consider that rare. No child should have to be forever six.”
The next fundraiser is a golf event Saturday, Aug. 17, across the river at Tanglewood Marsh. The cost is $65 per person, with four person teams. For more information on that and future events, follow the Fowlers on Facebook.