These two complex conditions are often closely related, with 85 per cent of babies born with spina bifida also having hydrocephalus.
Hydrocephalus is a build-up of cerebrospinal fluid in the brain, causing increased pressure inside the skull which can be caused by a variety of medical problems. Anyone can develop Hydrocephalus and may occur at any time during a person’s life. Hydrocephalus can be a serious condition, and must be treated. If it is not treated it can cause permanent brain damage or in severe cases, death. There is NO cure for hydrocephalus!
Spina bifida is a neural tube birth defect (NTD) which occurs within the first four weeks of pregnancy and affects the development of the spinal cord. This results in varying degrees of paralysis of the lower limbs and permanent damage to the spinal cord and nervous system. And nerve damage is permanent. There is no cure!
Physical and social barriers, medical complications, learning disabilities and financial burdens are some of the challenges that individuals with hydrocephalus and spina bifida, and their families must face each and every day.
Most people with hydrocephalus or spina bifida will have some difficulty in one or more of these areas: learning disabilities; memory loss; motor skills; pressure sensitivity; visual impairment; seizures; constipation; incontinence; hormonal imbalance.
Treatment for the variety of effects of hydrocephalus and spina bifida can also include medication, physiotherapy and the use of assistive devices.
In 2012 Sault Ste. Marie’s first TROY’S TRAIL Spirit Walk was organized and created to connect with others locally who are affected by these two conditions.
We are committed to making a positive difference in our community by spreading awareness, and offering support to others living with hydrocephalus and spina bifida.
Troy’s Trail sets the stage for mutual support and encouragement, information exchange and positive feedback. This atmosphere helps to provide personal growth, closer inter-personal relationships and increased self-esteem.
Therefore we feel it essential that family, extended family, friends, health & education professionals, including recreation and sport activities, and other community services are aware and informed of these conditions.
THE ANNUAL TROY’S TRAIL IS CELEBRATING 10 YEARS!
June is our month to highlight the importance of our cause through awareness and fundraising activities.
It is through public awareness, media relations, and social media that we promote a community that is supportive and appreciates the challenges faced by people living with these lifelong neurological conditions.
While we may not physically come together for this year’s celebration, we can still come together virtually to make this year a memorable one!
To date Troy’s Trail has raised over $22,500 for Hydrocephalus Canada.
We are making a difference! By working together we support each other to help improve the quality of life for all individuals.
If you would like to support Troy’s Trail and make a donation, please click on the link below
We do accept E-Transfers: [email protected]
Any donation amount is greatly appreciated!
For more information please contact Troy or Annette Chandler 705-946-4532 or leave a message.