June is Hydrocephalus & Spina Bifida Awareness Month and two local community members are committed to making a positive difference.
Since 2012, Troy and Annette Chandler have been spreading awareness and offering support to others living with hydrocephalus and Spina Bifida.
I had the distinct pleasure of interviewing Troy and Annette last week to discuss Troy’s personal journey
ABOUT THE WALK
In 2012, Sault Ste. Marie’s first TROY’S TRAIL Spirit Walk was organized and created to connect with others locally who are affected by these two conditions. Troy’s Trail sets the stage for mutual support and encouragement, exchange of information and positive feedback.
Troy’s Trails is a positive outlet for those living with lifelong neurological conditions. This atmosphere helps to provide personal growth, closer inter-personal relationships and increased self-esteem.
To date Troy’s Trail has raised over $22,500 for Hydrocephalus Canada.
JOIN VIRTUALLY ALL DAY ON SATURDAY, JUNE 19TH, 2021
If you would like to support Troy’s Trail and make a donation, please click here.
eTransfers can be sent to [email protected]
For more information, please contact Troy or Annette Chandler 705-946-4532 or leave a message.
ABOUT THE DISEASE
These two complex conditions are often closely related, with 85 per cent of babies born with spina bifida also having hydrocephalus.
Hydrocephalus is a build-up of cerebrospinal fluid in the brain, causing increased pressure inside the skull which can be caused by a variety of medical problems. Anyone can develop Hydrocephalus and may occur at any time during a person’s life. Hydrocephalus can be a serious condition, and must be treated. If it is not treated it can cause permanent brain damage or in severe cases, death. There is NO cure for hydrocephalus!
Spina bifida is a neural tube birth defect (NTD) which occurs within the first four weeks of pregnancy and affects the development of the spinal cord. This results in varying degrees of paralysis of the lower limbs and permanent damage to the spinal cord and nervous system. And nerve damage is permanent. There is no cure.
Physical and social barriers, medical complications, learning disabilities and financial burdens are some of the challenges that individuals with hydrocephalus and spina bifida, and their families must face each and every day.
Most people with hydrocephalus or spina bifida will have some difficulty in one or more of these areas: learning disabilities; memory loss; motor skills; pressure sensitivity; visual impairment; seizures; constipation; incontinence; hormonal imbalance.
Treatment for the variety of effects of hydrocephalus and spina bifida can also include medication, physiotherapy and the use of assistive devices.