Sault Ste. Marie participating in ALS Canada’s Walk To End ALS

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2019 Walk to End ALS
Poster courtesy of ALS Society of Canada

The ALS Society of Canada’s Walk to End ALS took a big step forward resuming in-person events throughout Ontario during June as part of ALS Awareness Month. The final 2022 Walk to End ALS event takes place in Sault Ste. Marie on Saturday, June 26, 2022.

“We are looking forward to holding the Walk to End ALS in Sault Ste. Marie as an in-person event,” says Emily Moffatt, Community Lead, ALS Canada. “While our virtual walks were a successful alternative during the pandemic, our ALS community is eager to gather in person to show their support for raising awareness for the amyotrophic lateral sclerosis (ALS), a disease that progressively results in paralysis because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will.”

The goal for Ontario in 2022 is to raise $1.9 million through its 22 in-person and virtual Walks. Funds raised will support the best ALS research in the country and enable ALS Canada to provide community-based support to people and families in Ontario living with the disease.

“There is no cure for ALS making community-driven events like the Walk to End ALS so important,” says Emily. “They provide an empowering and action-oriented opportunity for people living with or affected by ALS to gather to build awareness and raise much needed funds. The event helps bring people together in their desire to put an end to ALS, celebrates hope for a future without ALS, and honours those we have loved and lost.”

More than 3,000 Canadians live with ALS. The disease can move with startling swiftness: four out of five people die within two to five years of their diagnosis. Once diagnosed, the cost of the disease to the average family is between $150,000 to $250,000 – an amount that can include the expense of specialized equipment to help people maintain their mobility as the disease progresses, as well as lost income while family members take leave from their employment to care for their loved one.

Those with ALS face a progressive and gradual decline in the ability to talk, walk, eat, swallow, and eventually breathe.

The Walk to End ALS is the largest volunteer-led fundraiser for ALS Canada. Family-friendly and fun, it unites Canadians in their desire to put an end to ALS. Proceeds from the Walk to End ALS in Sault Ste. Marie enable ALS Canada to provide services and support for people living with ALS in Ontario, and to ensure a strong pipeline of funding for the best of Canadian ALS research. Last year, more than $2.1 million was raised nationally.

This year, participants in the Walk to End ALS in Sault Ste. Marie have a $25,000 fundraising goal. Details for the Walk are:

When:                   Sunday, June 26, 2022

Location:              The Roberta Bondar Park, 65 Foster Drive

Time:                     Registration: 10:00 a.m. / Walk Start: 11:00 a.m.

Distance:              1 to 5 km

Who:                     Participants showing their support for people and families living with ALS, and for research for a future without ALS.

Further information on the Walk to End ALS or to donate to the cause can be found at: https://walktoendals.ca/ontario or by emailing [email protected]

About ALS and the ALS Society of Canada
Amyotrophic lateral sclerosis (ALS) is an unrelenting and currently terminal disease. It gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down, someone living with ALS will lose the ability to walk, talk, eat, swallow, and eventually breathe. More than 3,000 Canadians live with ALS and approximately 1,000 Canadians are diagnosed each year. Four out of five people living with ALS will die within two to five years of their diagnosis.

The ALS Society of Canada is working to change what it means to live with ALS. Grounded in and informed by the Canadian ALS community, we respond to the urgent unmet need for life-changing treatments by investing in high-quality research that will fuel scientific discovery and by engaging industry, supporting increased clinical capacity and advocating for equitable, affordable and timely access to proven therapies.

Responding to the tremendous need for current and credible ALS knowledge, awareness and education, we empower Canadians affected by ALS to navigate the current realities of ALS, be informed consumers of ALS information, and advocate effectively for change. In Ontario, we provide direct community services to help people navigate ALS.

Founded in 1977, we are a registered charity that receives no core government funding – our work is powered by generous donors who share our vision of a future without ALS.

Join the conversation and connect with the ALS community online. Find the ALS Canada on Twitter, Instagram, or like our page on Facebook.